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Alzheimer's Links

Please note! We do not rate, evaluate or endorse any of these sites or content therein. That said, we hope that you will be aided in your search for Alzheimer's and related dementia and/or caregiving and health information by the websites listed below.

Click on the topic below to be taken directly to those links.
Additional Resources

AdvocacyAssociations in the Field of Aging
Chinese Language Resources •  Disease Specific Organizations
General Interest and Online ResourcesGovernment Agencies
Medical and ResearchOnline Resources

 

Additional Resources

San Francisco - Northern California Chronic Care Network for Dementia

Patients enrolled in two different managed care plans in San Francisco have a unique opportunity to participate in a partnership to improve the care of persons with memory loss and their caregivers. Through the project, the Alzheimer’s Association and managed care plans work together to address the special needs of these patients and their family caregivers with: 1) earlier identification of dementia; 2) improved continuity of patient care; 3) family caregiver education and support; and 4) care across the entire course of the disease.

Local partners: Alzheimer’s Association; Institute on Aging; Kaiser Permanente, San Francisco; and a group of Brown & Toland physicians at California Pacific Medical Center (CPMC). To inquire/participate: San Francisco Brown & Toland members contact Susan Roth, Institute on Aging (415-750-4180, ext 180) – or click here. http://www.gioa.org/research/foundation.html Kaiser Permanente (San Francisco members), contact Eileen Goldman (415-833-8753) or Catherine Steinbach (415-202-3605).

 
Advocacy

California Advocates for Nursing Home Reform (CANHR)
Offers information and advocacy for nursing home residents and their families and friends. Information on Skilled Nursing Facilities, specific services, and any documented licensing complaints, can be reached at: http://www.canhr.org/NH_Data/SNFDataIntro.html.

California Council of the Alzheimer's Association
Offers information and access to bills regarding legislative priorities at the statewide level. These are all issues that reflect primary interest to the Alzheimer's Association network throughout the state of California.

Families USA Foundation
National non-profit organization focused on affordable long term care.

Health Insurance Counseling and Advocacy Program (HICAP)
Get Free help from HICAP offices throughout California with Medicare claims, appeals, denials or delays of service or treatment. You can receive unbiased advice about HMOs, Medicare supplements, long term care insurance, and much more.

 
Associations in the Field of Aging

AARP Webplace: Caregiving
Extensive web resource on aging issues from the American Association of Retired Persons.

American Hospice Foundation
National organization providing information on accessing hospice, related workshops, publications and information.

American Society on Aging
Professional membership association in the field of aging.

Gerontological Society of America
Professional membership association in the field of aging.

 
Chinese Language Resources

The following web sites are recommended and can be viewed using browsers with traditional Chinese (Big 5).

Dementia articles published by Dr. Hsiu-Chih Liu.

Dr. Hsiu-Chih Liu's Home Page.

Dementia Website supported by Taipei Veterans General Hospital.

 
Disease Specific Organizations

LewyNet
Sponsored by the University of Notingham, this site provides scientific based information on Lewy Body Dementia.

National Alzheimer’s Association
Our national office web site, filled with useful information and resources concerning Alzheimer’s disease.

 
General Interest and Online Resources

Alzheimer’s List
E-mail based support group for family caregivers and professionals, sponsored by Washington University in St. Louis.

Caregiver Network
Canadian-based information resource for caregivers

Caregiver Magazine On-Line
Site offers bulletin board for caregivers, e-mail responses to questions and articles on caregiving.

Elder Web
Information on eldercare and long term care with general aging related articles.

Family Caregiver Alliance
Comprehensive web site offered by the California Caregiver Resource Center serving the San Francisco Bay Area, which services brain injured adults and their families.

 
Government Agencies

Administration on Aging
Site contains aging news, Older American Act programs, statistical information on older adults.

Health Care Financing Administration
Federal agency that administers medicare, medicaid (medi-cal in california) and child health insurance programs.

Medicare
The official US government site for medicare information. Information on medicare, medigap, health plans, prescription drugs and a search function for nursing homes.

National Institutes of Health
Offers information on current disease research projects and links to health related sites.

Social Security Administration
Official Government site for the Social Security Administration.

 
Medical and Research

Alzheimer's Disease Center
University of California at Davis site, with information on their clinical diagnostic services, research, education and information on Alzheimer's disease.

Alzheimer’s Disease Education and Referral (ADEAR) Center
The National Institute on Aging’s report on the latest research. Reliable and up-to-date.

Alzheimer’s Research Forum
Extensive list of web site links and scientific information, tailored to physicians and researchers.

Clinical Trials: Alzheimer’s
Clinical Trials Listing Service

Journal of the American Medical Association
Entry site for JAMA, a journal publishing original, peer-reviewed articles on a wide range of medical topics.

National Institute of Neurological Disorders and Stroke
Fact sheets on stroke-related and other dementias; information on current studies.

National Library of Medicine
Comprehensive site searchable for medical information on Alzheimer’s and other dementias.

New England Journal of Medicine
A leading medical journal with articles on dementia indexed and abstracted.

Research Center- The Nun Study
Background and regular updates on the longitudinal study of aging and Alzheimer’s disease.

Rush Alzheimer’s Disease Center
Site provides clinical trails and research information, along with on-line tri-annual newsletter.

 
Online Resources

Dementia Adovcacy and Support Network (DASN)
A non-profit organization created and maintained by people with dementia due to Alzheimer's disease or a related disorder, offering support, information, and adovcacy. Provides online support groups for people with dementia, and online newsletter, advocacy information, and links to other sites (local and abroad).

Alzheimer's Association
Online Helpline, especially for those in the Greater San Francisco Bay Area.

 
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